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DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 3 days ago | Replies (2316)Comment receiving replies
Replies to "@tomrennie I forgot to answer that his chemo “cocktail “ is Gemcitabine and Abraxane. Anyone else..."
@cjcurtis I was diagnosed with stage 4 non-operable due to mets to lungs. That was in 2022 @ 72. I was given 11 months with treatment. I am still here thanks to gemcitabine & Abraxane. Started with 2 weeks on 1 off and then changed to every other week. I had a 4-month break at the beginning of 2024 and am now on another. In total I have had 85 chemo treatments with Gemczar/Abraxane. Lost my hair after the second treatment; gained 35 pounds (now down 20 while on "break"). For nausea I followed the directions for the first 2 or 3 treatments which was generic Zofran alternating with generic Compazine. Now I use a Zofran maybe once a month 🙂 My most challenging difficulties have been the neuropathy, swelling of legs especially, then last fall blood clots. October thru December were brutal with extreme fatigue, heightened emotions and felt like I went through "chemo withdrawal" from January 2026 til about mid-February, then I had an energy boost & am back to "normal" except for pancreatic cancer & my CA19-9 is doubling the last 2 months hitting 1529.8 in April. Will get PET scan this week to see what is happening. Hair is growing back 🙂 (did not need it to start on my legs! 🙂 first)!
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@cjcurtis
My husband just finished 5 rounds of the same chemo.
It's been rough. No nausea but extreme fatigue, general overall pain and terrible mouth sores. Hey was hospitalized twice with neutropenia.
PET scan schedule in 9 days to see how successful it's been.
Is your husband for 3 infusions/month for 3 months?