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DiscussionAny experience with targeted therapy for BRAF V600E mutated tumor(s)?
Cancer | Last Active: May 17 8:08pm | Replies (12)Comment receiving replies
Replies to "@phillisi88 I met with specialist oral surgeons in different states but they only offered surgical options...."
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@bellavoce Marion, this is such great news! I'm sorry you had troublesome side effects but, in my reading at least, I would take every single one of those side effects over having my jaw resected.
In pursuing the inhibitors, did you insurance cover them, were you able to get aid from Novartis? And, pardon the intrusion, how far along was your ameloblastoma? My initial biopsy does not appear to have looked at gene mutations, given the rarity I wouldn't expect a lab to look for them, so I'm expecting to have that as part of my consult today.
I hope your healing continues!
Best,
Phil