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Myfortic vs Cellcept or Mycophenolate? Share your experience
Autoimmune Diseases | Last Active: May 5 6:00pm | Replies (33)Comment receiving replies
For me it's Progressive Multifocal Leukoencepholopathy, BK virus, and cancer that scares me about taking the Cellcept I was prescribed and don't take. I'm hoping at some point I'll get therapeutic plasma exchange or CAR-T treatment.
Replies to "For me it's Progressive Multifocal Leukoencepholopathy, BK virus, and cancer that scares me about taking the..."
@arlenelmh I’ve been trying to figure out how best to help you understand the drugs you are/are not taking. I, too, took prednisone and cellcept, and, to be honest, I was very nervous!
https://www.drugs.com/compare/cellcept-vs-prednisone
This book on drugs gives you a side by side comparison that you may find helpful. You may also want to have a frank discussion with your doctor about your chances of bad reactions if you take the drugs. You can also talk with your pharmacist about the drugs. As for getting therapeutic plasma exchange or CAR-T treatment, they are only used if the other treatments fail. Please, just think about all your options.
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@arlenelmh
CAR-T treatment is the most promising option at this time. However, it has some serious toxicities associated with it, way beyond what Cellcept is known to cause. You can research presentations from ASTCT, ASH and SRF websites. CAR-Ts in autoimmune diseases currently are only available via clinical trials. It may be another 2-3 years before any CAR-T for SSc will get approved. Need to stay on some medications until then. Cellcept is a reasonable option. If not well tolerated, then Myfortic. Both are frequently given with Rituximab infusions.