Dear David, I am so sorry to hear about your prognosis. Here in Australia we have what is called Voluntary Assisted Dying available. It is quite a long and complicated process to go through, so I suggest you explore your options as soon as possible. You may decide never to use VAD, but it is good to know that it is there to avoid what can be a cruel and traumatic end. I have ALS, and my lifespan is unpredictable. I have completed all my paperwork, taked with the children about my wishes, and although I am sad that I will not be around for much longer I am at peace with my prognosis and treasuring each day of life. My suggestion - explore your options for assisted death, so you have everything in place when/if you decide to go ahead. In the meantime, go ahead and do whatever will make the rest of your life enjoyable and meaningful. What have you got to lose? Take advantage of every opportunity which comes your way, don't sit at home feeling miserable, connect with your loved ones and friends, live each moment as each moment is precious. I am on the same journey as you, and I truly hope that everything goes well for you. I will be following shortly. @ellu