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DiscussionIs there anyone else in the Clinical Trial Sim0500 “Trispecific”
Blood Cancers & Disorders | Last Active: 14 hours ago | Replies (4)Comment receiving replies
Replies to "This is a phase one trial. All patients are given the medication. I had extreme pain..."
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@jefe You have my sincerest empathy for what you’re having to cope with. This sounds very similar to my intensive chemo for AML, The nausea and loss of taste buds was pretty rough and I know the rapid weight loss can be very frightening.
The consistency of food in the mouth is really off putting. Sometimes a tiny drop or two of maple syrup can make food ‘palatable’. I learned that from a Chemo Chef. Not sure what it is about maple but actually made a difference. Also helpful was no full meals. At least for me, looking at a plate of food…I’ll leave that unsaid. 😉 My husband would make me food, cut into bite-sized pieces and have ready in the fridge for me when I felt like I could eat. About a bite or two of one type of food was all I could stomach at a time before it left me squinching my face in rejection. LOL. Also, if you can eat some Greek yogurt daily. It can really help with gut issues and adds protein. Hang in there, my friend. It gets better!
The best news is it’s working! That’s amazing and motivational! Keeps you going through the tough times!
Please keep me updated with your progress. You can bring hope to so many people with refractory or relapsing MM!
I’m sure you’re not looking forward to injection #2. Hopefully this time it’s less painful for you. How many more rounds do you have?