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My sister has MAC & can't handle treatment. How can I help?
MAC & Bronchiectasis | Last Active: May 4 8:50am | Replies (17)Comment receiving replies
@ellenblythe ..oh forgot to mention,only 2 surgeons in NYC do this Robotic wedge lung resection .Surgery is also dependent on the location of your cavitary mass…mine was Apical, which means upper lung ,but a tele visit with Doc would be a starting place for you .
Replies to "@ellenblythe ..oh forgot to mention,only 2 surgeons in NYC do this Robotic wedge lung resection .Surgery..."
@visions63 Thank you. Im not ready yet! I have strange episodes of hemoptisis from time to time, but my 02 is always 98-100, and I don’t cough too much. My main complaint is fatigue which is not necessarily attributed to MAC but FMS. How did you get to the point, or what were your symptoms when you decided to surgically remove the lesion? thx
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@visions63 I was diagnosed with bronchiectasis with a 3 cm cavity left upper lobe a year ago. I've been on the big 3, currently started on clofazamine, and nebulized amikacin, along with azithromycin and ethambutul. Will get another CT in July. I've spoken with the surgeon and he stated that due to location, it is a very risky procedure (close to pulmonary artery, heart) with comorbidity at 30%. I'm uneasy about having the procedure. Glad to hear yours went well. I live in Oregon.