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← Return to New MAC treatment options??
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MAC & Bronchiectasis | Last Active: May 5 1:29pm | Replies (19)
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@sueinmn
Good morning, Sue
You're likely right about the Pulmonologist not being familiar with MAC or maybe I haven't been as proactive as I could have been. I think we'll wait to talk with our GP on Friday.
Since we live in Victoria, BC we don't have much choice in specialists.
Thanks again,
Susan
Replies to "@sueinmn Good morning, Sue You're likely right about the Pulmonologist not being familiar with MAC or..."
@suzanc I grew up in Victoria. But live in edm now. Have a great inf disease guy here and a good pulmonologist.
I have a person my mom knows that also has MAC and BE and lives in Vic. She says her specialists are also not great.
Just wanted to say hello.
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@suzanc
I was diagnosed with MAC and bronchiectasis about 3 years ago, it was uncovered by an MRI for another issue. I was referred to a pulmonologist in the Chicago area who was OK, treated MAC for about 10 patients. I found this support group, did some research and was able to find a pulmonologist at the Mayo Clinic in Rochester Minnesota, Dr Sarah Chalmers who is excellent. What I found most impressive is the skill she has in evaluating my CT scans. Not all pulmonologists are the same!! Seek out an expert. Right now I’m in a watch and wait period where I haven’t tried antibiotics. Nebulizing with 7% saline twice a day is key.
As we all know , this disease requires individual treatment, and the doctors you choose are most important.
Take care, Lorraine