@suzanc Susan, I wish we had a nickel for every time someone on Mayo Connect has posted "No one else I know has ever heard of either condition."

It sounds to me like you have a good ID doc, but the pulmonologist is not fully "engaged" in your care. Perhaps you can look at this list and find someone who specializes in MAC near you:
https://connect.mayoclinic.org/discussion/the-bronchiectasis-care-center-network-33-centers/
Or ask the ID doc for a recommendation to someone more familiar with this disease.

Please not - this is not an indictment of the current doc - most see very few cases in their practice, and are not necessarily up-to-date on treatment protocols.