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Anyone deal with pain post AUS 800 activation?
Prostate Cancer | Last Active: 6 days ago | Replies (17)Comment receiving replies
My prostate was removed in 2018, cancer returned; extensive radiation treatments. Severe leakage , 10+ pads a day. AUS installation on February 28 with Activation 6 weeks later. AUS works well with minor leakage.
Almost daily I now experience sever pain near my penis tip after usage. Frequently this radiates to the bottom of my body right behind my scrotum and becomes very painful to the touch. Sitting is impossible and I must stand until this passes; up to one hour. Pressing on the right side behind my scrotum finds a “pointy bump” and tubes that are very painful. The pain is severe and breathtaking. I’ve tried pads; no pads, 2 pads, no change.
The pain comes on quickly; massaging the area and oral pain killers help but massaging is not advisable on commercial airline flights, and I have three long trips scheduled this year.
My doctor does not have any other patients with these symptoms; no suggestions.
Anyone have similar issues? Anyone with suggestions? Considering deactivation and returning to pads; pain now is too difficult. What is going on?????
Replies to "My prostate was removed in 2018, cancer returned; extensive radiation treatments. Severe leakage , 10+ pads..."
just when I am almost ready to have the AUS put in, a message will pop up that makes me nervous again. I have been using condom catheter every day the last 6 years. While this is a terrible inconvenience, I am reluctant to add more trouble. I still consider myself lucky though. No other treatment.
So sorry you are experiencing this pain 🙁 🙁
Has your current doctor ordered any tests or scans to see what is going on ?
I am sure a consult with another doctor or facility will help.
If you search here on AUS you will find similar discussions, here is another patient that also had pain:
https://connect.mayoclinic.org/discussion/aus-800-post-activation-pain/
@diverspy47, I moved your question to this related discussion so you can easily connect with others.
- Anyone deal with pain post AUS 800 activation?https://connect.mayoclinic.org/discussion/aus-800-post-activation-pain/
Has the pain improved in the past couple of weeks? How soon is your first trip?
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diverspy47,
You seem to be in a terrible spot with this.
I've been blessed with a great surgeon (at least for me) and no real problems.
I'm surprised your surgeon didn't have a lot of insightful questions for you to sort this out. Like: does anything seem to initiate the pain? How often does it occur? Can you describe the "pointy bump" you feel? Any actions that seem to make this occur? Where do you massage to relieve the pain?
If in your situation I think I'd try to find a non-affiliated surgeon familiar with AUS and get a second opinion. Or, just maybe, a neurologist??
If you want, send me a private message and I'll give you my surgeon's contact number. Granted you'd likely have to send whatever scans of the area you have, full history and the like - and then do a tele-med meeting. But it could be a place to start.
Prayers for your success in getting some normality!