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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: May 7 8:48am | Replies (907)Comment receiving replies
Just started on 5 mg of Camzyos yesterday. Of course it’s too early to see any results, but hope to feel some soon. The fatigue is really bad some days, and SOB is most of the time, along with pain in left side rib area. I’m really hoping it helps. Will keep you posted.
I’m a 65 year old man and was diagnosed on December 29th of last year.
Replies to "Just started on 5 mg of Camzyos yesterday. Of course it’s too early to see any..."
@dconner
I was also diagnosed in December and am 65
After 3 months on camzyos my side effects were horrific and I was basically unable to function (was a healthy active person prior )
Having septal myectomy end of the month
I’m not a believer in the camzyos treatment. It’s like a roller coaster and you end up back in the same place.
I have heard that’s it’s worked for some but not for me
Good luck
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@dconner Hello, again, @dconner! I see you posted here as well as in the "Introduce Yourself" thread. I am really hoping Camzyos helps you, too, because HCM is getting in the way of you living the life you want. I know that Debra @karukgirl pointed to the blog on Camzyos. Have you also been learning as much as you can about HCM? The knowledge helps us better understand what our doctors are explaining and helps us ask our best questions. Here is an article to read: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198. I cannot give first-hand comments or share experiences because Camzyos was in the testing stage when my HCM needed medical intervention. Yes! Do keep us posted!