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← Return to New MAC treatment options??
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MAC & Bronchiectasis | Last Active: May 5 1:29pm | Replies (19)
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@sueinmn
Hello Sue, I hope you're still doing well and enjoying another beautiful Spring.
I was diagnosed with MAC in January of the current year with a co-diagnosis of Bronchiectasis after having been treated for pneumonia over the course of the previous 6 months. I've been on the Etibi, Rofact and Azithromycin regimen for 3 months and many days feel as though I'm getting weaker.
My question is: Is it a helpful to nebulize at the same time as taking these meds? I'm not confident how helpful my doctors (GP, Infec Disease, and Pulm) will be if I ask them.
Many thanks
Susan C.
Replies to "@sueinmn Hello Sue, I hope you're still doing well and enjoying another beautiful Spring. I was..."
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@suzanc I'm sorry you feel like you are getting weaker - unfortunately, the antibiotics can be very hard on the body, and quite a few people feel this.
Do the doctors have you doing daily airway clearance to help clear your lungs?
You NEED to talk to your doctors about airway clearance and nebulizing, and get answers - if not, maybe they are not familiar with treating MAC and you need to find a different care team.
Do you have a feeling for how familiar they are with MAC? Have you had a CT scan to determine whether you also have bronchiectasis, and to determine the severity of your infection?