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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (491)Comment receiving replies
@panamsandy nice to meet you! My husband's numbers are between 600-700s and he is on Plavix and aspirin. The itching is really bad for him, the bruising he tolerates but we can actually watch bruises appear without any cause for them. It's scary at times.
Replies to "@panamsandy nice to meet you! My husband's numbers are between 600-700s and he is on Plavix..."
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@dwilson072516
Wondering if Taylor has tried taking a daily antihistamine? I take generic loratadine (the active ingredient in Claritin) every day. ET's weird platelets can set off our immune reaction, causing itching and stuffiness. Loratadine helps me a lot.
Our daily low-dose aspirin reduces clotting activity -- for those of us with too many platelets, that's a good thing! But reduced clotting means even a teensy paper cut will bleed (always pack Band Aids!). And bruises are just unclotted bleeding under the skin.
Maybe instead of thinking bruises are scary, you could think of them as proof the aspirin and Plavix are working well, maintaining the fluidity of his blood?