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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (491)Comment receiving replies
@kat260 What is VAF? I'm 76; diagnosed last year; April's quarterly platlete level 536; my doc said a bone marrow was not necessary. I'm on one 81mg baby aspirin per day; no symptoms. Glad to meet you!
Replies to "@kat260 What is VAF? I'm 76; diagnosed last year; April's quarterly platlete level 536; my doc..."
@panamsandy Glad to meet you too. VAF is the measure of variable allele frequency in the JAK2 V617F gene. Mine is listed as %var/total JAK2. The number would be on your initial blood test result which measures this load. The lower the better. Interferon treatment may reduce this load which is why I am interested in trying it when the time comes. Glad you have no symptoms. May be because your platelets aren't too too much over and your VAF is low? I have fatigue and headaches on and off, both manageable.
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@panamsandy nice to meet you! My husband's numbers are between 600-700s and he is on Plavix and aspirin. The itching is really bad for him, the bruising he tolerates but we can actually watch bruises appear without any cause for them. It's scary at times.