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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi. I’m Nancy Banks. I’ve been living with neuropathy for about 4 yrs now. I have a really complicated health story so I won’t try to share it all. My kidneys failed about 9 yrs ago due to kidney stones destroying them. I was on dialysis for 5 yrs. I got a kidney transplant in November of 2014. The neuropathy started about 6 mos before my transplant. It was very severe. I cried every day and took 10 mgs of norco twice a day. It didn’t help. My pain dr suggested trying Interferential Therapy which is similar to a TENS unit but does more things. I used it for about 1 1/2 yrs and it helped tremendously. However, I still have pain in my feet. I’m down to 5 mgs of norco once a day so I’m thankful for that. I was considering acupuncture but I don’t know anyone who’s tried it. I’m hoping maying you all will have some other ideas to try. Thanks for letting me join and share my story.
Replies to "Hi. I’m Nancy Banks. I’ve been living with neuropathy for about 4 yrs now. I have..."
Hi John. Thanks for your response. I look forward to sharing information with others. Thanks for referring me to the kidney transplant people.
@banksnc49, Hi, Nancy, I want to add my welcome to Mayo Clinic Connect. I do not have any experience with neuropathy. However, I am liver/kidney recipient (2009) and I am always honored to meet another kidney recipient. I volunteer as a mentor in the Transplant Discussion Group. I would like to extend a hand to you and ask you to visit the Transplant Discussion Group. There is a variety of interesting conversations happening there and I want you to know that you are welcome to read, and to join in anywhere. https://connect.mayoclinic.org/group/transplants/
I would be happy to join you there anytime. I look forward to hearing more of your transplant story.
I am not aware of any relationship between kidney failure (kidney stones) and neuropathy. Do you think that there is any connection?
Rosemary
Hello Nancy @banksnc49
I would like to add my welcome as well. I am glad that you found Connect. While I have never experienced a transplant, I know a little about neuropathy and have tried some therapies to deal with it.
What types of physical therapy have you tried? Any other meds besides Norco?
I look forward to getting to know you better.
Teresa
My Indocrinologist Dr. Latif here in Memphis helped me more with my PN than any other Doctor ,he put me on Vits. . B12 Folbee,, and D,E after changing my diet no Carbs ,not packaged food ! I finally got my PN under control not burning in my feet 24/7 , I take Elavil at night for pain helps with sleep ,and only take a half of a Tramadol if I go shopping or on my feet for a few hrs. I elevate my feet when sitting down at home , Tumeric is also a great pain reliever you can put in your food or make hot drinks ! I personally make homemade soups and add it in my food !! But,can buy it in Pill form !!! Hope this helps!!
Connect
Hi Nancy @banksnc49 -- welcome to Connect. Thank you for sharing. You certainly have been through a lot. I only have numbness with my peripheral neuropathy in my legs and feet and no pain. I have tried a TENS unit but didn't have much success with it. I know others have used them with different levels of success. I do take over the counter supplements for my neuropathy which have helped some.
I'm tagging other members who have neuropathy to see if they can share some ideas with you on what they use for treatments. @bburleson1 @swiss @hollander @fonda @gratefulone @mikween @aliskahan @grandma41 @rabbit10 @gailfaith @crystalgal @gman007 @mari @amkaloha @bobsconnect @salena54 @robertlclark @upnorthnancy @mfobrien36 @timmckinney -- do you have any suggestions for Nancy?
Nancy since you mentioned have had a kidney transplant I would also like to invite two of our Connect Mentors @rosemarya and @hopeful33250 to see if they can offer any suggestions.
John