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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (491)Comment receiving replies
@kat260 interestingly I haven’t done a bone marrow biopsy yet. This MPN specialist who recommended peg has strongly advised me to do one, however, my normal hematologist is OK with a clinical diagnosis. Honestly, at the moment, I am absolutely thankful because it would impact my mood significantly. So I’m happy that I’m on peg even without a biopsy. Needless to say I’m not sure if my insurance is OK with that as well, we will see. Additionally, I am aware that the most common approach is to do a biopsy. By the way my vaf is 26.
Replies to "@kat260 interestingly I haven’t done a bone marrow biopsy yet. This MPN specialist who recommended peg..."
@birgitr Excuse my ignorance, but what is peg? I have ET with Jak2 mutation but hemo did not think bone biopsy was necessary. My platelets were in 600 range when put on hydroxyurea so I dont understand someone being at a 1000 with no treatment to reduce platelets.
@birgitr If you do need to do a biopsy demand that it be done in interventional radiology with sedation. My oncologist tried to talk me into no sedation but NO WAY would I agree to that. It was not a bad experience at all.
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@birgitr Well there's another similarity! I agree, I'm thankful to not do one also as there's lots going on in our lives at the moment and it would definitely add more stress. How did your self injecting go?