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@sillyblone
Have you or your family experienced the roller coaster that we seem to be on -- for about a month after acute PT he is doing well and out of the clear blue he suddenly has rubber legs and can't stand on his legs/walk even with a walker if someone isn't holding him up. No doctor or MRIs seem to be able to explain why or what is happening. The best they can do is say "it may be that he gets a virus" - very scary as I know this has happened several times before and then we do the "go to ER, run tests (he gets weaker as he stays in bed" and then to acute PT. So frustrating.

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Replies to "@sillyblone Have you or your family experienced the roller coaster that we seem to be on..."

@graziellaz
Unfortunely, yes! My spouse should glow in the dark. Numerous CT, MRI's and EEG. He has seizures and sometimes low blood sugar's. I can usually tell if it is one or them both. He has has PD since 2013. When u know what it looks like..trust your gut. I went with him so many PT visits and he is good for awhile..then again he is weak and won't exercise( and they are so easy to do) He gets apathetic..Leave me alone as I want to watch TV. I used to do them with him and he took no initiative to go further. We worked out for 5.5 yrs. at the YMCA! It was a Parkinsons program. Get hooked up with the Parkinson's Association/Micheal J. Fox. They have you tube videos that are good. Don't be discouraged if he does not want to participate. It seems to be the case for some men. I think us women call it"Pride". Keep in touch and I will answer as soon as I realize u have sent me something. Caregiving is hard and no one ever asked for it. Keep ur head up and don't feel like u cannot question a physician. I did it quite frequently through his dealing with every issue u can imagine. Strong women stick together!! I would like to know when you find out new things and maybe I can spare u from the healthcare system that does not always look out for our loved ones!! 💕🫂