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Oncology Care Rejection

Prostate Cancer | Last Active: 4 days ago | Replies (23)

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@northoftheborder 1-local oncologist said Chemo and no other option 2-Second (Mayo) and third opinion said that is Chemo is not standard of care Radiation + ADT (Hormone Therapy) is standard of care you want to keep Chemo in your back pocket just in case you need it at a later time.

I went with Mayo and have had 20 days of radiation treatments (Prostate, Lymph nodes, Bladder, 2 bone Metastasis). Sense Medical Oncologist has retired and suggested I go back to the original local oncologist my case was "too easy" for Mayo Oncology team (WHAT? very degrading). Stated I went with Mayo because of the original recommendation no way would I reengage with my local oncologist who did not lay out the options.

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Replies to "@northoftheborder 1-local oncologist said Chemo and no other option 2-Second (Mayo) and third opinion said that..."

@greg2026
Unless you have more than five metastasis, they don’t usually do chemo. They can zap them with radiation as long as there aren’t too many. I know someone who had 15 zapped in multiple sessions. Not all doctors will do that.

Good to hear radiation was decided to be the best thing for you. You definitely want to leave chemo on the table for later, It has so many side effects.

@greg2026 It sounds like you've had best and latest standard of care.

How's your PSA holding up?

If it's very low (or falling) a few months after starting treatment, then your cancer is castrate-sensitive, and I don't think chemo would be usual.

If it's still high (or rising) despite a few months on Lupron and Darolutamide, then your cancer is castrate-resistant, and something like chemo or Pluvicto might be indicated.

Obviously, a) I'm not a physician, and b) everyone's case is different.