Rut Roh Rorge - PSA wrong direction

Posted by mjp0512 @mjp0512, Mar 17 10:44am

ADT / ARSI since June 2025
IMRT Oct 2025

PSA:
4/21/25 - 30.11
7/9/25 - 0.55
8/26/25 - 0.19
12/3/25 - 0.23
3/17/26 - 8.80

Methinks there's a problem. 😮😮😮

Results just popped up on the portal. Haven't heard from the Doc yet but I'm guessing another PSMA PET is in my near future. ALP is pretty high too, so liver or bone mets? Not yellow yet so I'm guessing bone. Maybe an ALP Isoenzyme test to determine source of elevation?

In any case, this sucks a little. 😡

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Profile picture for Jeff Marchi @jeffmarc

@mjp0512
I would really be surprised to hear they would give you radiation to a prostate spot they’ve already Radiated. That’s usually a lifetime radiation dose.

Be interesting to hear what they come up with.

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@jeffmarc - Yes, I'm looking forward to finding out too. Had to shake the tree a little since my GUO's office told me next month is the earliest they could see me. My PSA doubling time is sitting at 2.8 weeks and has been since March. In my opinion, sitting around for months at a time waiting for treatment is not in my best interest, so I called radiation oncology directly. RO will check my scans and call back today with a treatment plan. And...I wanted him to know that he missed and needs to fix it.

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OK then...got the call back from RO. Stat MRI of lower spine ordered to provide for SBRT targeting of L5.

He will not do any form of additional radiation to prostate at this time and tasks oncology with a pharmaceutical remedy. A radiological option may be available in the future, but it is too short a timeframe since concluding IMRT to be considered now since any damage from IMRT may not appear for some time. Seems to make a certain amount of sense.

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Profile picture for mjp0512 @mjp0512

OK then...got the call back from RO. Stat MRI of lower spine ordered to provide for SBRT targeting of L5.

He will not do any form of additional radiation to prostate at this time and tasks oncology with a pharmaceutical remedy. A radiological option may be available in the future, but it is too short a timeframe since concluding IMRT to be considered now since any damage from IMRT may not appear for some time. Seems to make a certain amount of sense.

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@mjp0512

I am so glad that you got some input and explanation 😌 and the plan seems pretty straightforward which is good. You will zap that L5 (as did Jeff) 👍 - and perhaps it is better to take one step at the time. I am sure that your RO will now also "activate" the rest of a team and schedule your next app. ASAP ! It is really unconscionable that they pushed your app. so far down the road 😠. I do not understand doctors and clinics most of the time ....

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