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@graziellaz
Hello. My spouse has been on Carbodopa forever.. It helps and ten sometimes it helps ok. He is in end stage. My spouse has not used Ripinorole. I know it is used for Restless Leg Syndrome. I am not sure if my brother or my father used it. Both of them were further along when they were diagnosed. I stayed on top of my spouses symptoms so as to use whatever would help. Carbo worked well for a long time. Most of these medications can cause dizziness and nausea. I would question everything and have questions ready for your physician. This is a very complex and debilitating over time. Prayers to you and your spouse. It is a tuff disease. Be his advocate even when he thinks he has it under control..I hope you both get the best treatment advice that you can. 🫂

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Replies to "@graziellaz Hello. My spouse has been on Carbodopa forever.. It helps and ten sometimes it helps..."

@sillyblone
Have you or your family experienced the roller coaster that we seem to be on -- for about a month after acute PT he is doing well and out of the clear blue he suddenly has rubber legs and can't stand on his legs/walk even with a walker if someone isn't holding him up. No doctor or MRIs seem to be able to explain why or what is happening. The best they can do is say "it may be that he gets a virus" - very scary as I know this has happened several times before and then we do the "go to ER, run tests (he gets weaker as he stays in bed" and then to acute PT. So frustrating.