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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
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Replies to "Now I have seen your message, thank you so much for your long and precise description..."
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@birgitr Oh good. Happy to share. As you say, we do seem to be similar though I have not had any HU treatment yet except daily Aprin 100mg and I turned 61 last month! Totally agree. Definitely worth trying Interferon to reduce that allele burden. I really hope it works for us. My VAF is 16.25. Yours? I didn't have a bone marrow biopsy. Did you? I've read most say you need to have it but my haemo says it's not necessary. I'll be interested to see if the other Dr recommends it.