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Now I have seen your message, thank you so much for your long and precise description simply keeping me updated, I am pretty grateful for that because our journey seems to be a kind of similar and so I am glad to be able to share our experiences. Yes I guess it is so valuable to get a second opinion and what a coincidence that your doctor is totally ok with that. And to know that he will prescribe peg when necessary definitely helpful. And can’t wait for her recommendations because in our age it might be relieving to act in a direction of health modification. We have to be aware that only dealing with the sideeffects allows the vaf to increase over time, that’s not what we want 😅. Can you remind me about your vaf which is the number?

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Replies to "Now I have seen your message, thank you so much for your long and precise description..."

@birgitr Oh good. Happy to share. As you say, we do seem to be similar though I have not had any HU treatment yet except daily Aprin 100mg and I turned 61 last month! Totally agree. Definitely worth trying Interferon to reduce that allele burden. I really hope it works for us. My VAF is 16.25. Yours? I didn't have a bone marrow biopsy. Did you? I've read most say you need to have it but my haemo says it's not necessary. I'll be interested to see if the other Dr recommends it.