← Return to Camzyos improved my gradient but my symptoms are not better

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Yes...I was not out of breath or fatigued before Camzyos. The HCOM doc was irrated with me then and said I was in denial. Gradient was greatly improved a month after starting Camzyos but I am breathless and tired all the time. I feel like I live half of a day each day...

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Replies to "Yes...I was not out of breath or fatigued before Camzyos. The HCOM doc was irrated with..."

@christine270 The cardiologist who stated that you were in denial is not wearing your body and feeling OK in terms of breath and fatigue (which is probably the case for most patients). That OK status described me for the first 20 or so years after a heart murmur was discovered and HCM diagnosed and before a drastic change in 2022. While I was having a stress test in 2016(?) another cardiologist accused me of denial/not reporting pain - why should I when there was none! Have you other options? People in these blogs report new drugs (myqorzo) are becoming available, perhaps further discussion with your doctor will help. I was never on Camzyos, it was in test stage in 2022, my cardiologist said that my HCM would not qualify and I had a septal myectomy in 2022.