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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@alaskaann

I've recently been diagnosed with small fiber neuropathy with unknown cause. I first started having pain about 4 years ago. I am just a bit depressed and discouraged and need to know I'm not alone.

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Replies to "I've recently been diagnosed with small fiber neuropathy with unknown cause. I first started having pain..."

Hello @alaskaann, welcome to Mayo Connect. Connect is a great place to ask questions and learn what others with similar health problems are doing for treatments. Let me be the first to tell you that you are not alone. I also have idiopathic small fiber peripheral neuropathy which I've had for 20+ years.

Do you have any pain with your neuropathy? Also, is the neuropathy in your hands and feet? I only have the numbness and tingling with mine. If you want to read the details of my story, I've shared them in a post here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=43#comment-65985
It's understandable to be discouraged and a bit depressed. What is good is to learn everything you can about your health situation and try to find something that helps you. You are your best advocate.

Do you have any questions you are trying to get answered?

John

@alaskaann

You're surely not alone. I have been having burning pain in my feet from idiopathic peripheral neuropathy for a number of years. I tried every medication for neuropathy, with no help. I had a spinal cord stimulator implant in June and the pain is greatly reduced, but not eliminated, unfortunately

I have both small fiber and autonomic neuropathy, still learning.

Medications for neuropathy has helped a lot of people.

Jim