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Colleen Young, Connect Director avatar

Living with Parkinson's Disease - Meet others & come say hi

Parkinson's Disease | Last Active: 18 hours ago | Replies (967)
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Profile picture for graziellaz @graziellaz

@graziellaz
Yes, he has been taking Carbidopa/Levodopa 25-100 mg 3x a day and rOPINIRole 3x a day for about 8 months. It has helped with his walking as his right foot doesn't get stuck as much. Since he's currently in the hospital where they have PT geared to Parkinson, the Neurologist there wants to increase the Carbidopa and wean him off the rOpinirole. I asked that she consult with his current neurologist before doing that.
How do I get in touch with @sillyblone ?

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Replies to "@graziellaz Yes, he has been taking Carbidopa/Levodopa 25-100 mg 3x a day and rOPINIRole 3x a..."
sillyblone | @sillyblone | Apr 30 5:33pm

@graziellaz
Hello!

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Teresa, Volunteer Mentor | @hopeful33250 | May 1 9:20am

@graziellaz
@sillyblone posted. Just click on "Reply" below her post, and then she can respond to your questions.

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sillyblone | @sillyblone | May 1 10:08am

@graziellaz
Hello. My spouse has been on Carbodopa forever.. It helps and ten sometimes it helps ok. He is in end stage. My spouse has not used Ripinorole. I know it is used for Restless Leg Syndrome. I am not sure if my brother or my father used it. Both of them were further along when they were diagnosed. I stayed on top of my spouses symptoms so as to use whatever would help. Carbo worked well for a long time. Most of these medications can cause dizziness and nausea. I would question everything and have questions ready for your physician. This is a very complex and debilitating over time. Prayers to you and your spouse. It is a tuff disease. Be his advocate even when he thinks he has it under control..I hope you both get the best treatment advice that you can. 🫂

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nova11723 | @nova11723 | May 4 6:52am

@graziellaz
I have been on that combination (Carbidopa/Levoidopa/Repinirole (Requip) for many years. The only reason that I see to wean somebody off of Ropinirole if their urges (gambling/sexual) are too strong. You should ask the neurologist why they want to have you wean off the Ropinirole and what the long-term plan is?

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