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Anyone had bone marrow transplant for sickle cell disease (SCD)?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 2 2:20pm | Replies (11)
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Thank you sm for researching
Yes the pain is terrible top most painful diseases
Well then I’ll have to wait for two years I guess
The pains are more frequent I don’t know why
I can’t exercise anymore makes it worse
I try to get my steps in
It’s just crazy how much the pain is
I hope for a better future because it’s been hard
I resumed a week ago but it’s been hard maybe im not ready yet

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Replies to "Thank you sm for researching Yes the pain is terrible top most painful diseases Well then..."
Lori, Volunteer Mentor | @loribmt | Apr 30 11:51am

@bloomthesickler If you’re finding an increase in your pain level after returning to work, your body may not quite yet be ready for that level of demand. Having a BMT isn’t a quick recovery. Even after almost 7 years, I still have days where I have to pretty much just rest and recover if I’ve overdone the previous days.
I know it’s tough to be idle as well. Is working part time an option for you?
Do you seem to have more discomfort when you overexert or are fatigued?

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