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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: 1 day ago | Replies (687)

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Profile picture for mikayla @mikaylar

I will tell you what to do. I had this monster for 14 years before I was cured in 2 weeks. I was given the anti-seizure drug, Topamax off-label for a daily persistent migraine. It relieved the pain in my butt in 2 weeks, but did nothing for my headache. My pelvic therapist told me a year later that she had heard of this. It is worth a try. Topamax had nasty side effects but you won't need to take it long. Worth a shot, right?

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Replies to "I will tell you what to do. I had this monster for 14 years before I..."

Interesting. Can you please elaborate on the bride effects? Are they reactions most people experience with that particular med? Any luck with the migraines? Those are so debilitating, feel for ya. Having head &,butt pain would be horrible. Thanks for the tip, wishing you relief from suffering pain.

@mikaylar

@mikaylar
Anything is worth a shot! Thank you

@mikaylar I took Topamax for a few months and I had such horrible fatigue and zero appetite that I had to stop it. And it didn’t help my PN 🙁