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Anyone with Myeloma post ASCT taking lenalidomide for maintenance?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 11 8:32pm | Replies (11)
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Profile picture for a9uradha @a9uradha

Yes it was a part of treatment before ASCT. But i feeL neuropathy issues increase after using it despite reduction in blood disorders as per PET SCAN

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Lori, Volunteer Mentor | @loribmt | Apr 30 9:27am

@a9uradha. If you felt your neuropathy worsened from the medication before your ASCT then I can certainly understand your hesitancy in using Lenalidomide as a post transplant maintenance drug.

As patients we have the right to ask questions and also help make our own medical decisions. The maintenance drug may help to keep you in remission longer or, the ASCT may do that on its own. I do know neuropathy can be debilitating and also interfere with your mental health and your well-being overall. I think this is a valid discussion to have your doctor…what’s the risk vs reward?

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