I will tell you what to do. I had this monster for 14 years before I was cured in 2 weeks. I was given the anti-seizure drug, Topamax off-label for a daily persistent migraine. It relieved the pain in my butt in 2 weeks, but did nothing for my headache. My pelvic therapist told me a year later that she had heard of this. It is worth a try. Topamax had nasty side effects but you won't need to take it long. Worth a shot, right?

Ugh, i hear ya. Not very helpful is it. My Dr. basically said he doesn't know what else to do test wise. I've had all kinds & tho it's great nothing has been found if all those results lessened painful symptoms I'd be thrilled. Not so obviously. Hope you find some answers. Take care.
@sapphiregirl