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Symptoms getting worse on Camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: May 1 9:30am | Replies (19)Comment receiving replies
@cash298
I’m scheduled for myectomy end of May. Nervous but can’t wait for any chance to get my life back .
I was never told that you need a “wash out” period to get Camzyos out of your system. My gradient has increased significantly and my symptoms as well. Dizziness has subsided
Can’t wait to get back to being active and happy
Replies to "@cash298 I’m scheduled for myectomy end of May. Nervous but can’t wait for any chance to..."
@cindyw9999 good luck and prayers.. Read a lot and prepare yourself. I was not happy with anything having to do with camzyos from day one, the heart failure clinic in Louisville had no idea what they were doing, had excuses for everything I was feeling and just blew off all of my concerns which were all confirmed by CC. I am so happy to be in my way back to life, the weeks of healing will be worth it.
Connect
@cindyw9999, no doubt you are nervous about upcoming surgery. This is not just any surgery either, and it's totally normal to feel apprehension. The end of May is right around the corner!
I hope you have had a chance to learn what you could from Connect about open heart surgery and preparing for it. From mental preparation to packing, there are a lot of tips here. I posted this last year, and you may or may not find it helpful:
https://connect.mayoclinic.org/discussion/what-i-learned-from-my-open-heart-surgery-part-1/
@brumasterj , a fellow member who Camzyos did not work and had open heart surgery details his Camzyos journey and the period of being taken off before surgery. If you have not read his story clink on his link and take a look...it may help you.
Do you have a list of questions prepared to ask at your pre-op visit? May I ask where your surgery is being done?