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Partner diagnosed with prostate cancer recently

Posted by myboo2u @myboo2u, Apr 20 1:49pm

Hi. My partner was recently diagnosed with prostate cancer.
He will be having surgery in about a month. Does anyone know about cribriform morphology-in a portion of the prostate, found on the MRI?
I know it's not a good thing but I don't know how concerning this is. Any info would be appreciated.

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myboo2u | @myboo2u | Apr 21 11:56am
In reply to @charlesprestridge "@myboo2u Lots to learn. 3.5 cm is a large lesion. I have not had treatment and..." + (show)
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@myboo2u

Lots to learn. 3.5 cm is a large lesion.

I have not had treatment and working thru all the information myself.

My thoughts:

1. Make sure you are working with a Center of Excellence or a Facility that specializes in Cancer. There are always some great Doctors at General Hospitals, but those that just deal with Cancer are preferred.

2. You will want to also be consulting with a radiation oncologist, along with a surgeon.

3. 2nd opinions are so valuable.

4. Do not wait for someone to make a referral or next appointment. Call different Centers and ask for appointments for 2nd opinions, etc..

5. After my initial biopsy results, I started asking friends and friends of friends who they recommended (Doctors). Then I called and asked to see those Doctors. It turned out to be very easy process. It is not always the case, but calling and asking can start the process.

Best Wishes.

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@charlesprestridge
Thank you.
I appreciate your advice and kind words.
I hope that you find your path to healing.

Melinda

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myboo2u | @myboo2u | 4 hours ago
In reply to @jeffmarc "@myboo2u You can get a second opinion on the biopsy. Does cost $500 but this doctor..." + (show)
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@myboo2u
You can get a second opinion on the biopsy. Does cost $500 but this doctor is an expert at it and can spend a lot of time on the phone with you talking to him directly to discuss what’s going on.

If you decide to get a second opinion biopsy with him, he will take care of getting the tissue that he needs to do the evaluation.

Dr. Epstein biopsy
https://advanceduropathology.com

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@jeffmarc ,
Hi Jeff. Thank you for the recommendation to Dr. Epstein.
My partners biopsy slides are on the way to him.
I spoke with him briefly prior to sending slides.
We definitely need additional information & help.
I confirmed that the Cribriform lesion is 1.4inches in length or 3.5cm.
Very scary. And the pathologist that signed the initial report was very hostile and was not able to help & didn't want to discuss.
I'm really glad that Dr. Epstein is willing to advise us..
Thank you again. I hope your doing well.
Melinda

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1 reply
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Jeff Marchi | @jeffmarc | 3 hours ago
In reply to @myboo2u "@jeffmarc , Hi Jeff. Thank you for the recommendation to Dr. Epstein. My partners biopsy slides..." + (show)
Profile picture for myboo2u @myboo2u

@jeffmarc ,
Hi Jeff. Thank you for the recommendation to Dr. Epstein.
My partners biopsy slides are on the way to him.
I spoke with him briefly prior to sending slides.
We definitely need additional information & help.
I confirmed that the Cribriform lesion is 1.4inches in length or 3.5cm.
Very scary. And the pathologist that signed the initial report was very hostile and was not able to help & didn't want to discuss.
I'm really glad that Dr. Epstein is willing to advise us..
Thank you again. I hope your doing well.
Melinda

Jump to this post

@myboo2u
Something is wrong with that pathologist. It is not possible for the cribriform to be 3.5 cm, sure, the lesion could be that big but the cribriform piece in it can’t be even a fraction of that size.

It should be interesting to hear what Dr. Epstein has to say.

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1 reply
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myboo2u | @myboo2u | 2 hours ago
In reply to @jeffmarc "@myboo2u Something is wrong with that pathologist. It is not possible for the cribriform to be..." + (show)
Profile picture for Jeff Marchi @jeffmarc

@myboo2u
Something is wrong with that pathologist. It is not possible for the cribriform to be 3.5 cm, sure, the lesion could be that big but the cribriform piece in it can’t be even a fraction of that size.

It should be interesting to hear what Dr. Epstein has to say.

Jump to this post

@jeffmarc
Yes, we are truly looking forward to speaking with Dr. Epstein.
It took over a week or more just to get the slides sent.
I will update you, if okay with you.
Melinda

REPLY
1 reply
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Jeff Marchi | @jeffmarc | 1 hour ago
In reply to @myboo2u "@jeffmarc Yes, we are truly looking forward to speaking with Dr. Epstein. It took over a..." + (show)
Profile picture for myboo2u @myboo2u

@jeffmarc
Yes, we are truly looking forward to speaking with Dr. Epstein.
It took over a week or more just to get the slides sent.
I will update you, if okay with you.
Melinda

Jump to this post

@myboo2u
I’m very interested in hearing what happens.

You could send me a private message if you want to.

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