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Waiting for the Numbers...

Prostate Cancer | Last Active: Apr 30 10:43am | Replies (23)

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Well, here are my new numbers: T is 20 and PSA is 0.67 after 60 days on ADT. So....T has stayed the same as last month but PSA is way down from 2.8. Talked with the MO and asked more questions this time, he said no radiation and no chemo. Stay on the ADT till it quits working then move on to another drug that will, he has had patients that went 5 plus years on ADT. Here are the numbers he provided: stageIV (cT2, cN1, cM1a) GG4. I looked these up and AI tells me this is Pca, distant mets, bone. Dr is going to start Xgeva/denosumab next month. I looked up the side effects of that and as usual they are intimidating. I am also listed on his chart as "palliative". So that is the story so far. Still working in the woods, felling big oaks and cherry trees , blocking, hauling, splitting and stacking firewood. Running the dogs, walking the trails, keeping up on all the work that needs to be done here. Dr says I am the fittest cancer patient he has. Lol. Dont know if I believe that but Ill take the compliment. I still come here everyday to read the posts and am amazed at the information available. Let me say that I really appreciate the posters that write about how they feel and deal with this cancer on an emotional level. So many eloquent writers. Well, that is all I know, now I wait for next months numbers.
Thanks for reading this post, Ill be reading yours. I wish all of you the best. Opinions, observations and suggestions are always welcome.

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Replies to "Well, here are my new numbers: T is 20 and PSA is 0.67 after 60 days..."

@stage4lovolmetpc
It’s good to hear your numbers are getting down. You’ve only been a couple months so they should go more.

Yes, chemo is what many doctors would do with someone who has The number of Mets you have, But I am puzzled as to why they only put you on ADT. Normally, you should be on doublet therapy, which includes an ARPI either Zytiga, Erleada, Nubeqa or Xtandi. I would ask your doctor why you aren’t on doublet therapy. Just about every center of excellence would say that is what you need, Staying on just ADT can make you become castrate resistant while adding that ARPI can delay that time for quite a while. It also would get your PSA down further. It isn’t low enough right now,, hopefully it will become lower in the next month. I know that a PSA around where yours is at allowed my system to create a Metastasis on my spine which I had to get zapped with radiation.

You might talk to him about going on Nubeqa. It has no side effects for The majority of people I know on it. It works well with chemo, So being on it would prepare you for that.

I just wonder if you need to get a second opinion. The standard of care is for you to be on at least doublet therapy if not triplet therapy. That would get you the best chance of having long-term remission.

Some things to think about, Not telling you what you have to do, but just telling you what is normally done.