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DiscussionET CALR looking at heart surgery
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (101)Comment receiving replies
Replies to "Thanks for the encouragement, everyone. One of the tests ordered as pre-op assessment is an echogram..."
Hi @nohrt4me ,
Good for you not making any hasty surgery decisions for your valve issue. It is great you have a whole team now working on figuring it out. Knowing more is better.
I saw a new older hand surgeon yesterday who was very honest with me and said he had never seen exactly what my ring finger has, but from my recent MRI and the one done first (not through my Medicare choice last year) that to him it really looks like indolent infectious joint problem and the only way to tell is to biopsy a small sample of bone there, tissue, and fluid. He did not tell me what I was told last year that I had an old injury there, maybe because that group did not do MRI with and without contrast and my first and last MRI of my finger were. Anyway, he feels I would be best seen and treated for it around here at UCSD and will let my primary doctor know that. So I not only have CALR 1 and ET or PMF, but a rare possible indolent bone infection in my right ring finger! We shall see and amazingly I have no pain or symptoms from either for which I remain thankful to God.
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@nohrt4me
Happy to hear that your doctors are at least talking to each other. I am sure they took your wishes into consideration of what to do; however, we have to trust they do know what they are doing, even though it is not what we would have wanted. Hope the next lot of tests help you to understand their thinking. I see my hematologist today regarding my operation next week. Should be interesting to find out her thinking and what she tells the surgeon.
Enjoy your time away with cats and enjoy your steak and a good book. My mouth is watering thinking about it. Take care lovely lady.