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Polycythemia Vera and low iron
Blood Cancers & Disorders | Last Active: Jun 12 12:22pm | Replies (34)Comment receiving replies
@livingston44 Have you had skin cancer from taking HydroxyUrea? My doctor wants me to switch medications and take Jakafi. I’m 72 and diagnosed three years ago. Told the phlebotomies have causes my low iron. Jakafi will not help with low iron I understand. Have you switched medications this soon and did it help with fatigue and fewer phlebotomies?
Replies to "@livingston44 Have you had skin cancer from taking HydroxyUrea? My doctor wants me to switch medications..."
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@1hostahoney I have PV JAK2 positive and take Hydroxyurea also. My doctor wants to increase to lessen phlebotomies. Currently every 8-10 weeks to keep numbers in check but it gives me too much tooth nerve pain and extreme sun sensitivity if I take too much. So she wants to switch me to Jakafi to lessen phlebotomies also. BUT there is a new drug that should be coming out by end of this year called RUSFERTIDE? It tricks the bone barrow into making less cells which lessens and sometimes eliminates the need for phlebotomies . Look it up. I’m waiting for it.