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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)Comment receiving replies
I have severe peripheral neuropathy in both of my feet, that has come on very quickly over the last 6 months and is quite painful. I'd like to know what to expect and how to deal with it. I have type 2 diabetes. I also have spinal stenosis and the doctors that I have seen don't seem to be able to determine what is causing the neuropathy. I also have osteoarthritis which complicates the whole picture. I look forward to taking part in the group as I get to know more about the whole process, for now I'm probably just going to watch and listen and see if there's anything that would apply to me.
Replies to "I have severe peripheral neuropathy in both of my feet, that has come on very quickly..."
Hello Lois (@loisogden), Welcome to Mayo Connect. We are happy you found us. Connect is a great place to share your health concerns, ask questions and learn what others are doing for treatments. I also have peripheral neuropathy. You can read my story here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=43#comment-65985
There is some information on diabetes induced neuropathy on Mayo Clinic's website here:
http://www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/basics/causes/con-20033336
Can you share what you are doing to treat your neuropathy now? Also, have you met with a neurologist and had any tests for nerve damage (EMG)?
John
Welcome to Connect, Lois @loisogden . I also have peripheral neuropathy in my feet, and the pain part came on quite quickly with me, as well. I'm not diabetic, so that means they don't know the cause of the neuropathy. From all I've read, it's often not possible to pinpoint an exact cause. That's true for me.
I've tried every medication for neuropathy pain that's available, and many more that are off label, and the only one that has touched the pain is morphine.
In June, I had a spinal cord stimulator implant, and I have experienced at least 80% relief from the pain. It doesn't help numbness or pins and needles. I'm an advocate now for the Burst DR spinal cord stimulator, for sure. I know it doesn't work for everyone, but I guess I'm among the fortunate ones.
Have you looked at the various discussions in the neuropathy group? You'll find a lot of conversation and useful information that I hope will be helpful.
Jim
Thank you Jim for your reply. You have shared a lot of interesting information with me, it kind of puts a new picture on it. The whole neuropathy picture is is new for me and a bit confusing with all the elements I have again not knowing what is causing it. But I'm hoping that something will be teased out in the near future with the referral to a new Dr. I'd like to look at some of the conversation that has gone on within the neuropathy group, as soon as I figure out how to find where it is.....
Lois, if you go to your home page, you should see a place to see the list of groups. Scroll down to the Neuropathy group, click on follow, and click on discussions. @loisogden
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I have peripheral neuropathy in my hands and feet. It was diagnosed about 12 years ago. Over time it has become very painful. I was told that it usually goes along with diabetes. But I don't have diabetes.