@bloomthesickler, Oh gosh, I’m sorry you’re not getting any answers. I’ve not personally had any pain associated with my transplant though I do know a couple of fellow acquaintances who experienced some mild joint pain, similar to arthritis. But nothing like you’re dealing with.
I did develop some atypical gvhd inflammation on my spinal cord. I had similar zaps of electricity along with losing sensation from my waist to my toes when it first started. It was dealt with swiftly by my transplant team. So I have no aftermath issues. But that’s why I wanted to make sure your team is exploring the possible causes.
Quite honestly, if this were me, I’d push for a neurology consult. Aches and pains are one thing. Electrical shocks and zaps are another. You may be experiencing something as simple as pinched nerves along your spine.
One other thing I might suggest that wouldn’t be invasive.
Have you tried having a session with a licensed massage therapist. When I recovering from my spine issues, it was recommended for me. It was very beneficial and seemed to be the last portion of my healing! So I go regularly now on a monthly basis. Just a thought…
If you don’t mind my asking, what is your age? And, has the transplant at least done the job in eliminating the sickle cell disease?