Good morning, @bloomthesickler. I’m really sorry to hear you’re having so much pain following your BMT almost a year and a half ago. It’s not uncommon for the first couple of months to be a little rough with fatigue and nausea. You mentioned having a roller coaster of issues. I think most of us who have had a BMT can relate to that experience. Things can be a little rocky that first year. But by 1.5 years usually life has mellowed out to a level of normalcy.

Because you’re still considered in the recovery phase, it’s very important to keep track of any changes in your body which could be related to GVHD (graft vs host disease). And right now it sounds like you’re really having some issues with your nervous system. This is not a normal and should be investigated by your transplant team. They may suggest some followup testing such as an MRI or consultation with a neurologist. When we have a bone marrow transplant there is always the possibility of GVHD where the new immune system we received can attack our body. I think it’s very important for you to speak with your team about this.
Have you discussed this with your transplant team?