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nohrt4me (Jean) avatar

Mitral valve repair prognosis?

Heart Rhythm Conditions | Last Active: Jun 12 7:27am | Replies (14)

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Profile picture for wcuro @wcuro

I am 78 and got a mitral valve repair at Cleveland Clinic at age 59. I had been “followed” by my cardiologist for 15 years, waiting watchfully during that time for a reduced ejection fraction, enlargement of the heart, and most importantly, how I felt. When I reported that I was getting fatigued and somewhat breathless with walking uphill, the date for surgery was set. Not getting the repair would have meant definite heart failure in my future. My regurgitation was classified as “moderate” at the time.
I had only a few inches of my sternum cut to provide access to the mitral valve. The recovery was quick. I was swinging a golf club within 6 weeks, little chip shots within 3 weeks. First days you will be quite sore but extra strength over the counter pain meds were adequate. Today, minimally invasive ( small incisions/ no sternum cut) is often possible. Everybody is at risk for AFib after this surgery. They will give you meds beforehand to avoid that reaction. I got one dose of Amiodorone and it did the trick. Even if your heart does react to the surgery with AFib, it is typically very short-lived.
My Blue Cross/Blue Shield insurance covered it. I live in PA with access to good hospitals but wanted the best available. Cleveland was # 1 in the world at the time. I called the 800 number for the hospital, was transferred through to cardiac surgery, asked if the Chief of Cardio thoracic surgery was available. ( Bruce Lytle at the time, since retired) Answer was yes. That hospital is a well- oiled machine. They are incredibly organized from start to finish. Yes, you will be a number- but in a good way. Plus, they somehow keep costs down, and serve as a model for other hospitals trying to do the same.
I would recommend calling the hospital ( go online and check Cleveland’s website related to heart surgery) and asking about costs when insurance doesn’t cover everything. Many hospitals have options and help for you in this regard.
I flew back to Philadelphia 5 days after the surgery, having followed a brochure you are given documenting everything that will happen during those 5 days, assuming everything goes as expected. That little addition was wonderful if you’re the type who wants to be informed, without surprises. Following surgery recovery, I did not transform into a decathlon level athlete but did feel far more energized and was glad to have it behind me. 18 years later, my mitral valve repair is still hanging in with only “trace” leakage.
Go for it! You’re too young and too needed to reject the help available to you at this amazing time of medical expertise.

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Replies to "I am 78 and got a mitral valve repair at Cleveland Clinic at age 59. I..."

@wcuro Thanks. My Medicare plan does not allow me to go top-notch facility, but the regional hospital is very good.

I never discussed sob, dizziness, or my other symptoms with my cardiologist because if you're a woman, they wave off anything they can't see, hear, or otherwise measure as menopause or stress. Plus, I tend to push through things because in America we like winners not whiners.

The TEE and ECG that revealed that the regurg was severe and a drop in ejection fraction from 60 to 50 were what motivated my cardio to decide I needed to be seen by structural cardio and surgeon.

Too needed? Too young? I loved my job teaching college lit and writing x 30 years. But a rare chronic blood cancer and caring for my mom before she died wore me out at 63. I hate retirement.

I have weakened immunity from daily oral chemo, so the volunteering I'd hoped to do is very limited. I read books, knit, try to be patient with my husband's failing cognitive function, and miss our son who moved to the West Coast this year. I have a few close friends and the cats to keep me going.

But I am in no way mentally ready for the kind of surgery I'm facing or the rehab I'm going to have to do to get myself back in shape to keep going.

Hoping my PC, whom I see next week has some ideas.

Thanks for listening.