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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@bookworm

I'm Birdie. I have neuropathy, primarily numbness, in my feet from a 10 year delayed diagnosis of pernicious anemia. When B12 is not absorbed into the body over a long period of time, nerve damage occurs, and some is not reversible. I also get shooting nerve "zaps", some quite forceful and various burning and itching in legs, hands, and feet. Other damage is the result of two meniscus surgeries, one on each knee, and moderate to severe osteoarthritis in my neck. Recently I have developed a burning mouth as well.

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Replies to "I'm Birdie. I have neuropathy, primarily numbness, in my feet from a 10 year delayed diagnosis..."

Hello Birdie (@bookworm), Welcome to Mayo Connect. We are glad you found us. Connect is a good place to ask questions, share your health concerns and learn what other Connect members with similar health concerns are doing for treatments. I would recommend reading through this discussion starting from the first post (just go to the top and click First at the bottom of the discussion description. If you see a post by a Connect member and want to ask them a question, just use their Connect name which has the "@" sign in front of it.

I have idiopathic small fiber peripheral neuropathy along with a few other health issues. You can read my story here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=43#comment-65985
Can you share what you are doing to treat your neuropathy and other symptoms?

John

@bookworm

Have you considered a spinal cord stimulator? I had an implant in June, and it has relieved up to 80% of the burning pain in my feet. It doesn't treat numbness, tingling or balance problems, but the pain was by far the worst part of my peripheral neuropathy. Are you getting any treatment for your symptoms?

Jim

I don't have any of those symptoms. Just loss of use of thumb forefinger and middle finger and burning pain in those fingers. Period, nothing else that wasn't a pretty existing spinal conditions.

@confused1955

A spinal cord stimulator sends, or interrupts the messages sent from the brain to whatever nerves are involved. It can treat nerve pain in the feet, hands, head, back and other places. For real information, Google Burst DR.

Jim

Thanks Jim I've never been offered this treatment.