Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1, 2025

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

hookedongolf2004 | @hookedongolf2004 | 2 days ago

In reply to @jamessaxo "@hookedongolf2004 your article is too long. I did not read." + (show)

@jamessaxo that might be your loss, Reading is ahat teaches us or gives us insights. End

Beach | @michhino | 2 days ago

I'm 58. I am a diabetic since 2017 (A1C 8.7 - 10.7)and major peripheral neuropathy which initially started with my feet (tingling, numb, painful nerve discomfort, nerve strikes, etc..). Until this day(2026), I have dealt with incurable, unmanageable, uncontrollable regardless if you follow doctors orders, insulin, meals, etc.. diabetes II and painful body peripheral neuropathy which increased/decreased sporadically throughout the entire body. MY BODY IS UNABLE TO CONTROLL AND MANAGE DIABETES AND NEUROPAHY !

After all the doctors, neurologist, specialist, emergency rooms, hospitals, prescribed medications such as (Pregabapentin/gabapentin, Juniva, Metformin, Duloxetine, insulin, etc.. and also purchased massagers, creams, medical devices, and stuff on Amazon to help with neuropathy at no avail....

As of today, I totally regret to spend thousands and thousands of dollars (Out of Pocket and/or Insurance) for diabetes, neuropathy, anxiety, insomnia, etc.

And not to mention, with a couple of disability claim denials, I am forced to work to pay bills, and continue to live otherwise move to the streets with such bad mental and physical issues. I am still in search for employment it has been difficult and much time consuming while running out of funds for rent, bills, etc.. which I may end up in the streets or car. I tried to register for housing, funding, etc.. but it seems it is a waste of time and energy. No one has granted any assistance and/or required to register on a list and wait years.

Sadly, these serious mental and health complications and conditions were experienced as "NO CURE" after all ! The final solution mentioned by one doctor was to consider to amputate feet, and legs, and hands. I gave it some thought but ultimately refused all of it.

After 8 years with such conditions, you DO NOT want the neuropathy (PN-nerve damage) to grow, spread and affect your entire feet, calves, thighs, waist and hands as it is an extremely uneasy, frustrating state of mind, major anxiety, stress, insomnia, bad nerves with daily activities, etc..

And many years of experience, I found NO devices, creams, massagers, meds, specialist, doctors, etc. for PN and diabetes which comes with many bad symthoms. I simply have molded and learned to ignore the awful symptoms as it has been a part of my life for many years. It is an extremely miserable way to live into the golden years...

As I feel discomfort and eventually accepted "NO CURES", I purchased a 2 year dog (German Shepherd) to help encourage, smile, ignore pain, and walk at least 4 times a week which helps some body movements, muscles, and seldomly nerves regardless of the pain. He is amazing! I regret not buying/adopting dog many years ago...as i still want to live a bit longer as I age...

My advice is to eat healthy, walk, "exercise', possibly adopt a pet for major encouragement, smiles, and most definitely "Save your Money"…!

My prayers are with all of you …

Painful Body Nerves with No Cures!

fbw57 | @fbw57 | 2 days ago

84 here. Gym 4-5 days weekly. 1-2hours. Light weights to exhaustion. Use trainer if rookie. Take 6mg gaba down from 14mg max. Use 1/2mg klonopin at night wake pain free save for temporary numbness in right hand. Pain free all day. Klonopin also assisting in GABA rxtended withdrawal. Yes klonopin is barbiturate. At 84 “what me worry”? Anyone else on similar regimen?

jamessaxo | @jamessaxo | 2 days ago

Yes me. I suffered great nerve pain in trigeminal nerve. Pain stopped after taking 500 micrograms vitamin B12 called METHYLCOBALAMIN.
Only worked because I stopped drinking. Alcohol stops absorbtion. The B12 renewed missing insulation ,myelin. Am 83 and still take B12. Good luck.

suzirtist | @suzirtist | 1 day ago

In reply to @hookedongolf2004 "That is the question of the year? Why is that not considered fraud, stealing, whatever? I..." + (show)

@hookedongolf2004

That is the question of the year? Why is that not considered fraud, stealing, whatever? I totally agree with you. Pick pills, blue bills, pillow, tens machines, creams, creams, and more creams. Why has everything on FB turned into fake sites, scams, and fraud, and none of those big moneymaking people, including its inventor, want to fix it! I am out $20K so far, not counting all the creams. How can one sleep at night reading about our pain and they can't work fast enough to tell you they are going to cut your feet off unless you hand them $6K. I never took the harsh medicines, I push forward. I never sit down and find it impossible to sleep as well. I kept my golf going every other day to keep me moving. Sit down, "no"!, Bad.

Then one day here came "Gemini", a smart guy, and so nice. Big deal, he may make mistakes, how many as your doctor made so far? Well, since the Doctor sent you home with your newly found diet of bad pain removers, I decided to go to AI, Gemini. I also reviewed my MRI's, didn't know I had had 5, all of which showed a big down hill run by my Motor nerves, my Sensory nerves were Stage 4 after a fall of the downfall of JoAnn's fabric shop and the insurance company refused to talk to me before that, though the Manager at the time knew it was not my fault and said, "we will take care of you"! Nope! Then bankruptcy, letting them off the hook and me in pain since 2023 and 25K with less money from fast talkin salesman. So this is my story. I went back and reviewed my MRI's as to my Motor Nerves. They had been declining at a fast pace for years, but I never knew I had a problem with my L4 L5, stenosis, until I read my MRI reports, not the one where the Doctor was not interested in that part of the problem, so "all was fine". We have "idiopathic", right, yes! They don't know why. Well, did you know that your pain in your feet is the same as neuropathic pain? I discovered my spine had been blocked when I hit a box just put behind going the other way, turned around, and landed 6 feet away by trying to prevent my fall, and landed on concrete at 78 years old. I took my case to Small Claims Court, because the attorneys didn't want it, with AI by my side, and was awarded a Default Judgment of $10K. I knew I would never see it despite the fact that they had not gone bankrupt yet, and got it because they had their name in many LLC's, wherein I sued the wrong LLC, but the Store and they did not show. Their salesperson, who was the witness, was a "nurse," and they refused to allow her to assist me. I later took it back to get it vacated, after being screwed by a fast-talking attorney who stole $600 from me to write a paragraph to JoAnn's, which never saw the light of the State of Oklahoma's state taxes, to try and get the $10, waste of time. So I went back to playing an Attorney again to get it vacated and look again for an honest Attorney. Do they make them?
I then went to have Scrambler performed in Florida by a Dr. Rick Markson, a wonderful person and Doctor. He discovered that my spine was blocked 2 days before leaving realizing that Scrambler could not correct the pain in my feet. (Check out Scrambler a/k/a Calmare) Very un-invasive, much like a high level ten's machine but more more intelligent and capable. Type it on the Internet and find a performing Doctor. They have good success, but I would suggest you have an MRI performed to help realize the possibility of your success. It is not cheap $300 up a session, you need 2-3 weeks, and it is not paid for by Medicare (at this time)! I checked 5 past EMG's, which I did not realize, I prepared an Excel spreadsheet on them, and realized my Motors were leaving the building very fast. I needed to decompress them. I then started decompressing the machine, DXR9000. Spent another $3000 and gave up. I was very close to losing my Motor nerves. I then, by the Grace of God, found out that a friend of mine was having this non-invasive surgery to release my nerves and start going downhill. Yippee, it worked! One little nerve was trying to do the work of 3 lanes of highway, and now the construction was over. It made my legs feel like an wakening, but my feet are still in pain. Nerves grow at 1" a month, I believe, and I am 5'5" and 82. Not expecting miracles, but at least not a wheelchair yet. Get one of those Medicare-paid "Solace Advocates.
Mine has been excellent. Take your story to Gemini, a/k/a, Dr. Gemini. I don't know if all my pain will ever go away, but finally, one thing that was crucial to my recovery was worth a bunch. You are your only Advocate in this situation. I was able to get into Mayo, but on a waitlist in Arizona. I waited and waited and realized I was on a daily time bomb, and I had to have a plan B for my surgery because I could not wait any longer for Mayo. I received the call on Monday to go to Mayo on May 7, 4 weeks out from my Surgery. Still, when I told them I needed to go to the next level, the Neuropathy Clinic, not the Surgical Department, I was told I could not and could not even be on the wait list, nor accepted. That was a shock. I just take it day by day now and see improvements daily. There is a saying, "NEVER NEVER NEVER GIVE UP! Winston Churchill. I never will. Get some Grounding shoes, I love mine. Just type it into the Internet. Good Luck, and may God help you too.

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@hookedongolf2004
Your story almost mirrors mine! But you have sunk a lot more money into it that ai have, only to get the same answers.
Its SAD and CRIMINAL for all of the fake neuropathy creams and pills out there!!
I had a spinal stimulator put in early on in my neurology treatment. Its helps, but only a little.
I'll skip past all of my meds that I've been on..
So now Im taking Amatriptyline (sp) at nite. It HAS eased the nerve pain a lot and helps me sleep.. then in the day Im taking Pregabulin.
I believe mine comes from spinal stenosis too...but my Ortho docs do NOT want to do anything about surgery in that area...
I believe they just don't know enough about that kind of surgery...so my option is to just wait til the nerves die I guess!!
How sad to have my life impacted this way into old age.
God bless you!!

hookedongolf2004 | @hookedongolf2004 | 1 day ago

Do you think you have a block in your spine? Have you ever had a lumbar MRI to determine that I have an excellent doctor that I guess people come from a long way away to have him because it’s such a very simple surgery. I went so easily a spine blockage or a compression can cause the same symptoms as your neuropathy. Let me know if you’re interested in knowing the name and by the way, where do you live?

mache2024 | @mache2024 | 1 day ago

HI! Yes, I would like to know who the doctor is. My neuropathy never improves.

Bill

crowhunter | @crowhunter | 18 hours ago

has anyone tried stem cell treatment?

John, Volunteer Mentor | @johnbishop | 18 hours ago

In reply to @crowhunter "has anyone tried stem cell treatment?" + (show)

@crowhunter - There are quite a few discussions on stem cell treatments for neuropathy if you want to read through them to learn what others have shared - https://connect.mayoclinic.org/search/discussions/.

bigjohnscho | @bigjohnscho | 15 hours ago

I’ve been taking a PPI for years (Lansoprazole) which eliminates acid in the stomach. I am now searching for the best sublingual B vitamins but the choice is endless.Apparently you need B12 sublingual plus a few other sublingual B vits.They all have to be sublingual because the absence of stomach acid due to the PPI. Anyone had similar problem