← Return to My frustration is off the charts

Discussion
grace4u avatar

My frustration is off the charts

Caregivers: Dementia | Last Active: 1 day ago | Replies (55)

Comment receiving replies
Profile picture for standinginfaith @standinginfaith

I'm so glad to hear either the VA has changed or yourall's is better than ours was for my husband.. they mad my life a living hell..it was 2010 and he was a 100% DAV Vietnam Veteran. referred to another VA for a biopsy on spot in kidney.. the 1st vist (3 hrs each way) a lady came screaming out.." they're killing my husband.. we drove 5 hrs each way to get a test and they didn't tell him not to take aspirin...pancreatic cancer.." well.. they say my husband and said ..he's got kidney and liver cancer and it's metathesized.. didn't explain what that meant. come back and the Chief of Urology will have a plan in one month.. we did and waited 5 hrs as people went in ahead of us . he finally got so mad he was going to leave.. so I told them.. then we got this dr who asked "what can he do for us"...I asked "what is the plan??" He didn't know ..and I told him "you're NOT the Chief of Urology and our appt is with him" and he didn't have a plan .. come back in another month.. so now finally they said then next month " they guy is too scared to biopsy it" and then I call the PA in DC and VSM regional and left a heated voice mail .. he finally got a biopsy in Nov.. and this all started in June.. so I had him referred to the outside on Indian Health... he passed in June the next year ..was on Hospice 21 days and I had NO help except nurse once a day and "washing girl every day.. 24/7..alone ..got 2 breaks.. once to Walmart and once to the bank.. SEVEN years later.. I got a call.. they wanted to biopsy him NOW.. WHY>.?? well the pathologist in Fayetteville had been injecting himself with an undetectable drug and working impaired for 10 years.. and they had to redo 33 thousand!! The town Hall meeting were heartbreaking!! Veterans misdiagnosed and dying .. and the Acting head of the VA yelled at their wives. what a mess!! So one day a l day from the Washington Post in DC called..looking for widows to talk to .. none would..I told her "you've reached the right widow.. (I had filed a 9 inch binder entitled He was a man not a budget line item.. " (SF 95 wrongful death..) no results.. VA rules on themselves.. I asked for my husbands slide back (they keep them 75 years a) and they refused so I called the IG in DC and was going to NAGPRA his slid (Native American Graves Repatriation Act) which really mad the guy mad at the next meeting. I told him finally.." we are members of a tour of duty you can never unmderstand .. members of the "widows brigade" from which you can never retire or resign" ..so many things they did wrong on his case and they knew it!! I didn't want any money .. just advocating for better health care.. and the Congression Rep here and in AR involved..I guess I'm still mad ..I loved my husband ..no children ..he was all I had.. and he deserved better.. Army Infantry Vietnam Lai Khe 68-69 .. Big Red One . volunteer..."Dear John letter while he was there.." .and had PTSD ..I married him later (his 3rd wife).. finally he had a happy 13 years before he changed his address to Heaven.. I have to forgive them..God will handle it..God has my David now these almost 15 years..I still miss him!! He never got a "welcome home" and was spit on in uniform when he was stateside.. I salute all our Veterans!! My Daddy was a WW11 vet.. veterans deserve the BEST care!! Thank you Veterans for your service and sacrifice and your families too!! God bless the USA!!

Jump to this post


Replies to "I'm so glad to hear either the VA has changed or yourall's is better than ours..."

Dear @standinginfaith

This is such a heartbreaking story and I thank you for sharing it. Thank you also for being willing to fight even after his death for someone to understand the real human costs of their incompetence and inadequate management. These days we have the same medical malpractice issues to guards against and in addition an even more daunting foe: The nameless, faceless mountain of administrative offices and staff who increasingly determine who gets what treatment, with no accountability.
A recent article noted:

"In 1970, there were far more physicians in the U.S. than healthcare executives or managers. By 2009, administrators outnumbered physicians by more than 10 to one. From 1975 to 2010, the number of U.S. physicians grew 150%. Administrative personnel grew 3,200%.

This is not mismanagement. It is not accident. It is mathematical inevitability: the compounding consequence of regulatory complexity, payer fragmentation, billing code proliferation, and the political economy of hospital bureaucracies that reward headcount with status and status with survival. Administrative bloat is not a symptom. It is a system behaving exactly as its incentives demand.

Today, administrative costs consume an estimated 34 cents of every dollar spent on U.S. healthcare. Overhead is the single largest line item in American medicine. Not drugs. Not devices. Not physician compensation."

I wish you peace as you continue to live fully, as I am sure your loving husband would have wanted.

@standinginfaith so sorry for your loss, my husband is also a Vietnam vet, so on top of his vascular dementia we also deal with many other issues. Your story about the VA is very sad and I’ve heard many like yours. I’m thankful the VA here has been supportive and helpful.