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Low, But Rising PSA--Wait for Imaging or Act Now?

Prostate Cancer | Last Active: May 11 3:56pm | Replies (72)

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Profile picture for bikeman1 @bikeman1

Thanks for the quick comments and questions. I agree that this forum is one of the best sources of information I have found, since I started this journey.
The 3 studies cited by Dr. Kwon supporting delay are on the screen in the PCRI conference replay (https://pcri.org) at 3:55:26. The discussion starts several minutes earlier.
I am convinced of the seriousness of my situation and look for advice on how to proceed.
I will have another PSA test on 5/4. I have a consult at MSK in NYC on 5/6 with Dr. Nagur. I asked about getting a medical oncologist in that appointment but they said that depending on the hormone therapy needed, Dr. Nagur (an RO) will prescribe it himself or I will need a subsequent appointment with the MO. I have an appointment on 5/15 with my local RO, Dr. Greco at Johns Hopkins (I live in DC). I will ask for an MO at that appointment, but I expect the same answer. Finally, I will get a genetic test for BRAC2 on 5/21.
Do you recommend other actions? Can you point me to the institutions/Drs. with the most experience with my situation?
Thank you so much for your help and support

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Replies to "Thanks for the quick comments and questions. I agree that this forum is one of the..."

@bikeman1
John Hopkins has some really great doctors. If you can connect with Dr. Channing Paller she is a really Great GU Oncologist You could not be doing any better elsewhere. I know a few people that have been treated by her and they All recommend her highly. She talks at some of the conferences as well.

Many times when I’ve attended weekly ancan.org Advanced prostate cancer meetings they have told people that live in the area to see her because she is so good.

Bethesda Maryland
Sibley memorial hospital
Johns Hopkins, school of medicine
GU Oncologist
Dr. Channing Paller GU Oncologist
Dr. Mark C. Markowski GU Oncology
Dr Deville RO

@bikeman1 Dr Nagar is great - very knowledgeable and easy to talk to. I think you’ll like him.
Phil