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My frustration is off the charts

Caregivers: Dementia | Last Active: 1 day ago | Replies (55)

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Yes, I would imagine we're all experiencing the same thing - based on the stage they are in. Yesterday for me was the same intense pressure cooker you describe. I'm not sure what we can do other than try to go to bed early, get some needed and "peaceful" sleep, wake up the next day, and go at this again, knowing, but hoping the day will be better. Their confusion is tiring; the worst part is they still hang on to what they know and do, creating more issues. Last night with the cell phone and PC, at our house - not in sync with each other - was exhausting and difficult. I'm not sure how to help other than to say: YOU ARE NOT ALONE. About the best you can do is not engage with him, when he gets angry. If you talk to him, go over to where he is sitting, so he can hear you better. If he needs a ride to the doctor, can you coordinate it with someone ahead of time. So, you get your much needed break, and you don't engage in a dialogue with him about "getting a ride." As for telling you you're making too much out of this, you just have to ignore what he says. Over time, I suppose as the progression gets worse, he won't be saying that. My husband is almost a year into his diagnosis too, and what you're describing is what I'm going through. It's been intense over the last few days, as all of this has become a long, tiring, extended day. I'm sorry for what you're going through; I'm sorry all of us caregivers are up against the fight of this horrible disease.
Best, Karla

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Replies to "Yes, I would imagine we're all experiencing the same thing - based on the stage they..."

@kjc48
It sounds as though the problem with dementia is that the dementia also prevents the patient from knowing they are off the radar screen. How can you be there for someone who doesn't "think" there's anything wrong?


Thanks to all of you for sharing. Life in an "intense pressure cooker" brings out the best and the worst in us.

Today, I will do my best to "not engage with him," and to just love my George.

So difficult to even be around my husband. So mean to me, talks down to me everyday. I try and be patient.Iam at my wits in.