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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
Hello @mlveal, and welcome! I'm so sorry to hear of your friend's pain and diagnosis of neuroendocrine tumors. It sounds like she is going through a difficult time, and it is very kind of you to want to help her.
From your post, it appears that she will be meeting with oncologists once her pain is under control. As neuroendocrine cancer is a rare form of cancer, my first thought would be to encourage her to be seen by a neuroendocrine (NET) specialist. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/
Before her cancer diagnosis, how was her health? Does she have any other chronic disorders?
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@hopeful33250
Thank you for your message. Since the diagnosis is relatively recent, we have not discussed a visit to a Mayo Clinic but will consider it when she comes home. We think that will be tomorrow. Prior to this diagnosis, she had breast cancer 5 years ago and last fall in the other breast. She had lumpectomy each time and 36 radiation treatments with the first cancer. The 2nd one did not require radiation as the lumpectomy had clean margins. In addition, she was an elite athlete in college and now lives with chronic pain due to 14 different surgeries to knees, shoulder, and spinal fusion. My friend is one tough cookie but this diagnosis has thrown her very hard. We will definitely find a NET specialist as quickly as possible. Thanks for the links.