Hi @philipschuyler,

I would assume you'd need up to date tests. They don't end – I am getting blood tests every 4 months to monitor for any progression. I had numerous tests initially. Test after test, it seemed like a process of elimination. I also thought it a little frustrating too, which led me to Mayo. The CLL rabbit hole is quite deep and there is a lot to learn if you are curious. Take the blue pill and learn all about it, or the red pill and move on (for now) – my Matrix reference.

I'm not a medical doc, nor do I play one on TV, so I can't advise you. I wouldn't base your decision on anyone else's data because (as I noted above) experiences vary so widely.

I can say that once I knew what it was it was, things became clearer for me & much of the initial worrying went away. For me, all thanks to the current drugs that are available, CLL is something I just live with. I hope this helps.