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DiscussionNeuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
Replies to "This discussion is helpful to me as a caregiver to a dear friend who has just..."
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Hello @mlveal, and welcome! I'm so sorry to hear of your friend's pain and diagnosis of neuroendocrine tumors. It sounds like she is going through a difficult time, and it is very kind of you to want to help her.
From your post, it appears that she will be meeting with oncologists once her pain is under control. As neuroendocrine cancer is a rare form of cancer, my first thought would be to encourage her to be seen by a neuroendocrine (NET) specialist. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/
Before her cancer diagnosis, how was her health? Does she have any other chronic disorders?