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@ksalvia
Thank you for the information. I could do a CT scan or an MRI if necessary, but for some reason the bone marrow biopsy scares me to death. I know it's childish to stop going to doctors bc you're afraid of both the tests and what they may end up showing, but I'm still leaning toward "wait-and-see" unless I start to get symptoms. (I'm a depressive, so the waiting periods from test to results are ruining my quality of life - esp when the results are often inclusive and just seem to serve as a springboard for more tests.) Do you think that doing nothing at all until I get symptoms, if I get them, is a viable choice?

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Replies to "@ksalvia Thank you for the information. I could do a CT scan or an MRI if..."

@philipschuyler I can understand your fear of the bone marrow biopsy as often people recoil at the idea and say it is very painful, but I believe the pain part may have been removed from the process these days. Husband says they gave him a local injection to numb him up, then took their samples via needle. It was not painful for him, they stuck a bandaid over the spot and he played a music gig that night .

Regarding tests just revealing the need for more tests, that is just part of the troubleshooting protocol. You want the most accurate picture of what all those tiny little cells are doing or not doing, and each test will focus more deeply on the suspects. The waiting for results drives me crazy too. Regarding trying to ignore things until you get symptoms- that is a personal choice but if I were you, I would get the tests the doctor recommends if only to get a baseline idea of the situation. According to our doctor, over the years, they have learned a lot about when to treat CLL and when to hold off. I think these tests will help in forming an opinion on whether to treat or hold off. Also the medical system has been overwhelmed since the pandemic: they’re not going to recommend tests you don’t need. You can do this!