Well this just gets me more depressed and anxious.
Seen a local RO as suggested, so that if margins had positive results from Thursday ROPR, I would have someone near to address the issues. Nice RO, he spent about 45 minutes with me.
If you have read prior post, you will see way back in Feb 27, the National Recognized Cancer Center (KUMC) said there was a spot on 5th rib that showed on PSMA Pet, but was not visible on CT. KUMC said get another CT in 3-4 months and see if it can seen. Had MRI that said all was contained to capsule. Decipher test not good was .85. Genetic test was just okay was one variant uncertain significance (VUS). Overall unfavorable/intermediate. Two of the doctors at the National Recognized Cancer Center they believe there was zero chance that 5th rib was from the prostate cancer and don't worry about it. Anyway, after trying to get surgery scheduled at KUMC for weeks and no response, I came back to Topeka at a urologist I know. He has me scheduled for surgery this Thursday PM using the DaVanci 5 Robotic System. He says he has done over 2, 000 prostate removals. I guess from what I hear the DaVanci 5 is one of the newer ones and he says it better that the older one. No time yet for Thursday procedure, won't know time until Wednesday sometime (the fun prep day). Just know it will be in afternoon.
Anyway what I found a bit depressing is the RO today said I should have had the CT scan to double check the 5th rib again prior to surgery. Said if it was showing up now on new CT scan, there would be no use for surgery. Other treatment would be done. From my understanding if it has spread, nothing will work anyway?? I am just toast. Well it's a little late to get a CT scan!! Then I have the 2 KUMC docs that said zero chance 5th rib lighting up on PSMA Pet was from prostate cancer. But RO I seen today said he has seen it skip from prostate up to areas like 5th rib or collar bone with nothing showing in between.
Then RO today says if I have positive margins (after surgery) they will have to wait 4 - 9 months before radiation and ADT as things need to heal up prior to radiation treatment. That seem odd, just let the cancer spread 4 - 9 months while healing up from surgery.
I left wishing I had never gone to that appointment. He was very nice, just didn't like what he was saying. Be a lot easier just dropping over dead with a heart attack.