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CKD renal cookbook

Chronic Kidney Disease (CKD) | Last Active: Apr 27 12:41pm | Replies (14)

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@ddon Diseases can be socially isolating, from being ill and not having the energy or social network. I learned from celiac that just ordering gluten free is enough for friends and coworkers to flee (fad diet and all). I always carry healthy granola/protein bars, and batch cook things so that I can freeze portions to take on trips (not easy when flying, but my sourdough GF bread is OK). Most people don't understand why our diets are limited, and feeling like one has to fit in leads to us eating what others eat. Most processed/frozen food is high in sugar and salt and low in nutrition. Lettuce wraps help to limit bread, if the meatballs by themselves are OK. I don't know if a class in healthful cooking would work, because people seem to like junk food. Could your daughter keep an area of the fridge/freezer for your foods? Talking with her could be useful. When I got celiac I got a call from my "best" friend saying "I had a big party and didn't invite you because I didn't know if there was anything you can eat"; afterwards I contacted all my friends and talked about how I enjoy meeting with them, that food is unimportant. Some dismissed me anyway, but all friends are friends in places. You are in a tough place.

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Replies to "@ddon Diseases can be socially isolating, from being ill and not having the energy or social..."

@kayabbott All your ideas are so valuable, I needed to hear your words, thank you Kay. I live alone so when I'm with my family I want to sit and eat with them at dinner for exactly what you said, to fit in and feel less socially isolated. To eat differently even with them is a small separation. It's hard for me to advocate for myself, I do initially but eventually I get tired and stop reading labels, stop talking about it. Yes I could keep a separate space in frig/freezer for my foods. I'm sorry you went through not being invited to a party just because of food. Sometimes it's easier to not say anything about what we eat, to forgo the looks or the oh your one of those. What's also hard is when you know they don't understand it, again the isolating feeling. It's just hard. In the end it's us who must take care of ourselves, this group is invaluable. I feel understood and not alone
Thanks sooo much! P.S. I do carry nuts, craisins and Kind bars with me.