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Worth visiting Mayo Clinic for evaluation of idiopathic neuropathy?
Neuropathy | Last Active: May 13 12:22pm | Replies (54)Comment receiving replies
My experience at Mayo Clinic Neurology involved an extensive evaluation, including a detailed history and multiple tests across different departments—such as a painful EMG , hearing and heat studies, bloodwork, etc.
$$$$ later there was no clear cause identified for my idiopathic peripheral neuropathy. I was referred to a pain specialist who recommended starting gabapentin and gradually increasing the dose, which did not provide meaningful relief and the side effects outweighed any benefits. In short, I did not find the process helpful.”
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@sash I'm so sorry to hear you did not find Mayo helpful. And you mentioned $$$$. Did you have to come out of pocket for a lot of money? Others are saying insurance (particularly Medicare) pays for it. Can you please tell us more about your experience with the costs?
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this is my concern about getting a neuropathy diagnosis. The results might be helpful to the medical community but have no impact on the treatment etc. of the patient. After being diagnosed with cellulitis and seeing the alarm of the doctors treating me I decided to do a deep dive in Google. Still not clear about how I got it as I have no cuts or broken skin that they talk about. But maybe more scary is that I read that neuropathy can be progressive. I have seen my Neurologist, Primary Care doctor and more an noone has mentioned progression. Okay, I use a cane, shower chair, portable walker etc and thought that I was doing okay at this level but if it progresses it sounds like a wheelchair. This new info has gotten me down and feeling hopeless. My experience is that no doctor that I have seen so far, can talk about diabetic neuropathy with any information that would be helpful for me to know. And yes, I check my glucose level several times during the day to understand how foods, drinks impact my levels. Honestly felt like I was doing everything that I can to deal with this insidious problem but it appears that may not be true.