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Sinemet (Carbidopa-Levodopa) and nausea
Parkinson's Disease | Last Active: Jul 29 3:23pm | Replies (28)Comment receiving replies
@trseaman0
May I ask why you were prescribed carbidopa-levodopa (sinemet) at 32 years old? I'm 31 years old I have been on carbidopa-levodopa since 2024. I have learned since being on it that its not commonly prescribed to young people and very rare for off-label usage, like in my case. I have had a permanent right calf cramp since 2021, with atrophy starting 2023 and all medical tests are negative/normal and in 2024 a neurologist from the Mayo Clinic prescribed me carbidopa-levodopa and it has helped with the stiffness of the calf. I take 4 pills 3 times daily.
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@nasbyevan
It was prescribed by my neurologist at Strong Memorial in Rochester, NY. I was seen first at Cleveland Clinic in Ohio. They kept me a week because my tremors were all in my legs and at that time they had never seen a case like mine. About 15 separate neurologist saw me. Then Rochester referred me to the Mayo Clinic in Minnesota. They put a Deep Brain Stimulator in that did help for about 15 years, but my condition has begun to progress. The Mayo Clinic said my Parkinson's is a result of environmental. We had well water and grew up on a farm, so all the chemicals from the farms were leaking into the well water. They tested the water in that area 3 years ago and found lots of chemicals. My brothervand I were both affected. The longer I've been on it the dyskinesia has progressively gotten worse and it is my understanding that this will happen with long term use of carbidopa-levodopa.
What really upsets me is that Parkinson's has been around since 1917 and carbidopa-levodopa is all they have for it. It's just sad