← Return to Myfortic vs Cellcept or Mycophenolate? Share your experience

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Profile picture for cicimee2 @cicimee2

Thank you for posting this. I have been taking cellcept for a month and a 1/2, and had your same experience with sudden extreme diarrhea. I have written my doctor and asked about the alternative Myfortic medication.. I have been diagnosed with pemphygus vulgaras. So I am under the care of a dermatologist. I have not seen anyone else taking this for an autoimmune condition.Only under transplant circumstances, is there anyone else prescribed this for autoimmune? I am very thankful to find this group.

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Replies to "Thank you for posting this. I have been taking cellcept for a month and a 1/2,..."

@cicimee2

In addition to post-transplant to prevent organ rejection, Cellcept is prescribed for autoimmune skin conditions, like pemphigus and scleroderma (skin thickening). It may be prescribed in other autoimmune and skin conditions as well. If you have developed bad GI symptoms on Cellcept and cannot tolerate it any longer, Myfortic may be a good alternative.
https://www.bing.com/search
Use of CellCept (Mycophenolate Mofetil) in Pemphigus
CellCept (mycophenolate mofetil) is an immunosuppressive drug approved primarily for preventing organ rejection after transplantation, but it is also used off-label in autoimmune blistering diseases such as pemphigus vulgaris and sometimes bullous pemphigoid

@cicimee2 Welcome to Mayo Clinic Connect! I’m so glad you found us and could see an example of how MCC works. We all share information on our illness and the journey we’re on. There are no doctors on this program so no one can or should prescribe medications. Do you have any more questions for the group?
What specific drug are you asking about? The cellcept is definately for autoimmune issues. I was told that diarrhea with cellcept could be very dangerous because diarrhea is a side effect of cellcept. Did you have a colonoscopy to determine cause of diarrhea? My colonoscopy showed that the cause was not cellcept but EPI-exocrine pancreatic insufficiency. But, I remained OFF cellcept and ON Myfortic just to be safe.
Sounds ‘clear as mud’, doesn’t it? Let me know what your doctor says/does. I’ll be thinking of you!